
Since being told that The Blokey has Nephrotic Syndrome (although I still need a definitive response to the question, does he really?) we’ve indulged in an inside joke involving the approximate area of my right kidney and the words, I’ll have that juicy one please. It’s only funny if you’re us, obviously.
The following is second-hand information, which was told to me by a very upset Blokey who had just arrived home from seeing his Renal Consultant at the Big Teaching Hospital in maC. I can’t guarantee that it’s fully accurate, but even if it isn’t it’s still heart-wrenching to know that most of it probably is.
Apparently his kidney’s are only functioning at 33%. This is down on October (when he was in hospital) when they were functioning at 50%. If this trend continues he’ll be on dialysis quicker than you can say anything. And yet less than a year ago we were told that even if he did eventually need dialysis it would be a very long time in the future. Transplant? Not an option, currently. He’s an overweight chap, probably due to the condition, which he must have had for years before it was diagnosed. He’s lost a lot of weight and most of what he still carries is actually fluid retention and/or protein which has leaked into his body. They can’t get any medication (and they seem to have tried most things) to kickstart his kidney’s into functioning properly. If they can’t get his kidney’s functioning better than they are, then he can’t lose the fluid/protein!
Irony? I’d like to bop Irony on the head and tell him to Piss Off and leave us alone.
And what am I supposed to say to the man that I love? I can’t pat him gently on the head and say, there there, it’ll all be better soon. He’s not a little boy who just needs a plaster on his grazed knee. He’s a grown man who has a career, a car to run, a mortgage to pay and a wife to keep. He wants a family.
I can see everything we have slipping away from us. It’s not nice. It makes me want to curl up like a four year old on my Mumsy’s lap. Sticking my thumb in my mouth and ignoring the world around me would be far more comforting than being the Strong One.
My only hope is that he misunderstood what the consultant was saying. But how likely is that? Needless to say, I will be at the next appointment in six weeks.
I’m going to go away and scream now (and dye my hair, probably) …
(hugs, thoughts, prayers and Good Vibes would be very much appreciated at the moment, kthxbai)


